The Crows are continuing their good work off the field, this time partnering with the EB Research Partnership to both raise awareness and hopefully find a cure going forward.
EB stands for Epidermolysis Bullosa which is a disease that attacks the skin and internal organs and can affect children and adults from Birth.
The reason this disease comes about is that people suffering lack the proteins that bind the skin's layers together. This means the outer layer of skin can easily tear, blister and shed off which in turn leads to severe fear and pain.
The disease can affect people's ability to leave the house and be social due to the fear that any brush on the skin could cause serious issues. Even everyday activities such as eating, sleeping and playing can result in extreme pain.
EB Research Partnership CEO Michael Hund said he was grateful for the Crows joining the foundation’s worldwide team of supporters, as they strive to accelerate treatments and the search for a cure.
“Children that battle this disease each day inspire our mission because of their bravery, determination and heroism, and these are the same characteristics we have found among those at the Adelaide Football Club,” Hund said.
“Our mission is to cure EB by 2030 by funding the most impactful and innovative science in the world, including research being done at the University of South Australia, and thanks to the support of the Crows we can put speed and urgency in that mission.”
The partnership will have a match-day presence during the big clash against the Demons at Adelaide Oval this weekend. The Crows show hosted by Rory Sloane will also bring some international entertainment looking to raise funds for the cause.
EB Research Partnership was founded by a dedicated group of parents who set out to save their children’s lives, along with Jill and Eddie Vedder from American rock band, Pearl Jam.
Crows CEO Tim Silvers said the Club had been inspired to play a part in helping the fight against the disease.
“We were taken by the passion and values of the EB Research Partnership and the mission they are on to find a cure for this traumatic and devastating disease,” Silvers said.
“People and families who are impacted by the disease are battling this every day, they do not get a break from it, and we admire their courage.
“Currently there is no cure and we are hoping to help, even if only in a small way, to help them try to find one.”
To learn more about EB Research Partnership’s mission and to get involved, visit https://ebresearch.org.au/.